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Last Updated: 07/21/14

Ethical, Legal, and Social Implications of Cancer Research

The ethical, legal, and social implications of cancer research (ELSI) are increasingly complex and of paramount concern in the genomic era. Protecting the rights and welfare of human research participants involves moral considerations as well as regulatory compliance. Researchers should be aware of best practices and policy options in the following controversial areas: The collection, storage and future research use of biological samples and genetic data; researcher access to potentially identifiable information; appropriate consent and community engagement, data sharing models, and the return of research results and incidental findings.