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U.S. National Institutes of Health
Last Updated: 03/05/10

Appendix A

Summary of State Laws

This summary of state laws does not include full citations for statutes that prohibit discrimination in employment or insurance on the basis of genetic testing or genetic information. There are other comprehensive collections of state laws addressing genetic nondiscrimination in employment and insurance. Therefore, there are complete references only where the statute is relevant for the conduct of research using tissue specimens.


Confidentiality of Health Information

Health plan utilization agents may not disclose personal health information except as permitted under HIPAA. [Kentucky Revised Statutes Annotated 422.317].

Conditions Imposed on Genetic Testing/Use of Genetic information

Restricts the use of genetic information for provision of insurance.

Permitted Releases of Health Information or Genetic Information for Research


Definition of Genetic Test/Genetic Information