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U.S. National Institutes of Health
Last Updated: 03/05/10

Appendix A

Summary of State Laws

This summary of state laws does not include full citations for statutes that prohibit discrimination in employment or insurance on the basis of genetic testing or genetic information. There are other comprehensive collections of state laws addressing genetic nondiscrimination in employment and insurance. Therefore, there are complete references only where the statute is relevant for the conduct of research using tissue specimens.


Confidentiality of Health Information

HMOs may not disclose personal health information without the individual’s express consent. [Kansas Statutes Annotated 40-3226(a]

Conditions Imposed on Genetic Testing/Use of Genetic information

Restricts the use of genetic information in the provision of insurance or employment.

Permitted Releases of Health Information or Genetic Information for Research


Definition of Genetic Test/Genetic Information

Genetic screening or testing means a laboratory test of a person’s genes or chromosomes for abnormalities, defects or deficiencies, including carrier status, that are linked to physical or mental disorders or impairments, or that indicate a susceptibility to illness, disease or other disorders, whether physical or mental, which test is a direct test for abnormalities, defects or deficiencies, and not an indirect manifestation of genetic disorders.

[Kansas Statutes Annotated 40-2259. Genetic screening or testing; prohibiting the use of; exceptions.]