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U.S. National Institutes of Health
Last Updated: 03/05/10

Appendix A

Summary of State Laws

This summary of state laws does not include full citations for statutes that prohibit discrimination in employment or insurance on the basis of genetic testing or genetic information. There are other comprehensive collections of state laws addressing genetic nondiscrimination in employment and insurance. Therefore, there are complete references only where the statute is relevant for the conduct of research using tissue specimens.


Confidentiality of Health Information

Hawaii repealed its state statute regarding privacy of health care information following the passage of HIPAA.

Conditions Imposed on Genetic Testing/Use of Genetic information

Hawaii prohibits discrimination in insurance and employment on the basis of genetic information.

Permitted Releases of Health Information or Genetic Information for Research

Permitted for certain types of research

Definition of Genetic Test/Genetic Information

“Genetic information” means information about genes, gene products, hereditary susceptibility to disease, or inherited characteristics that may derive from the individual or family member. [Hawaii Revised Statutes Annotated 432D-26]

“Genetic test” means a laboratory test which is generally accepted in scientific and medical communities for the determination of the presence or absence of genetic information. [Hawaii Revised Statutes Annotated 378-1].