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U.S. National Institutes of Health
Last Updated: 03/05/10

Appendix A

Summary of State Laws

This summary of state laws does not include full citations for statutes that prohibit discrimination in employment or insurance on the basis of genetic testing or genetic information. There are other comprehensive collections of state laws addressing genetic nondiscrimination in employment and insurance. Therefore, there are complete references only where the statute is relevant for the conduct of research using tissue specimens.

ALABAMA

Confidentiality of Health Information

Patient medical records must be kept confidential, regardless of the state where the medical records of any Alabama patient are maintained [Code of Alabama Section 34-24-504].

Conditions Imposed on Genetic Testing/Use of Genetic information

Conditions are imposed on the conduct of clinical genetic tests for cancer [Code of Alabama Section 27-53-1 et seq.].

Permitted Releases of Health Information or Genetic Information for Research

None.

Definition of Genetic Test/Genetic Information

“Genetic Characteristics.” A scientifically or medically identifiable gene or chromosome, or alteration thereof, that is known to be a cause of a disease or disorder, or determined to be associated with a statistically increased risk of development of a disease or disorder.

“Genetic Test.” A presymptomatic laboratory test which is generally accepted in the scientific and medical communities for the determination of the presence or absence of the genetic characteristics that cause or are associated with risk of a disease or disorder. [Code of Alabama Section 27-53-1]