This summary of state laws does not include full citations for statutes that prohibit discrimination in employment or insurance on the basis of genetic testing or genetic information. There are other comprehensive collections of state laws addressing genetic nondiscrimination in employment and insurance. Therefore, there are complete references only where the statute is relevant for the conduct of research using tissue specimens.
Rules imposed on genetic testing and genetic privacy. Written informed consent is required to collect DNA samples, perform DNA analysis, retains DNA samples or disclose the results of a DNA analysis. [Alaska Statutes 18.13.010]
Managed care entities may disclose medical information without the individual’s consent for research that is either: 1) subject to federal law and regulations protecting the rights and welfare of research participants, or 2) protects the confidentiality of the participants in the study through coding or encryption of identifying information. [Alaska Statutes 21.07.040]
DNA mean deoxyribonucleic acid, including mitochondrial DNA, complementary DNA, and DNA derived from ribonucleic acid. [Alaska Statutes 18.13.100] DNA Analysis means DNA or genetic typing and testing to determine the presence or absence of genetic characteristics in an individual, including tests of nucleic acids or chromosomes in order to diagnose or identify a genetic characteristic; DNA analysis does not include a routine physical measurement, a test for drugs, alcohol, cholesterol, or the human immunodeficiency virus, a chemical, blood, or urine analysis, or any other diagnostic test that is widely accepted and in use in clinical practice; (3) genetic characteristic includes a gene, chromosome, or alterations of a gene or chromosome that my be tested to determine the existence or risk of a disease, disorder, trait, propensity or syndrome, or to identify an individual or a blood relative; genetic characteristic does not include family history or a genetically transmitted characteristic who existence or identity is determined other than through a genetic test. [Alaska Statutes 18.13.100]